Hey all
My daughters condition is terminal and it in the same cat as downs as itsa trisomy downs children have extra 21 chromosone Macy who has patous has extyra 13, Its a struggle for us to real struggle even more cause Macy doesnt seep all the sleep she has is 2 hrs in a 24 hr block and its tiring. Im proud of myself and My daughter for all we been through but shes my daughter and id do anything for hwr. Love to you all
Katrina
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