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  #1  
Old 04-03-2007, 03:26 PM
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Default Anybody got crohn's disease?


I've been diagnosed since May 2005, but I don't know anyone that's got it. It would be nice to talk to someone who knows what it's like.

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Old 04-03-2007, 03:33 PM
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i havent got it and dont know any1 with it but ive heard it can be a really bad thing to live with
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Old 04-03-2007, 04:02 PM
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A friend of mine has it but she had to go through some awful stuff before they diagnosed her with it, and they just kept telling her she had IBS for years!
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Old 04-03-2007, 04:13 PM
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it took them a yr to diagnose me. Its not too bad when you're well. it's just when you're ill. Luckily my tablets are working and I'm well.
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Old 04-03-2007, 04:37 PM
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If you don't mind me asking, how old are you and what are the symptoms and treatment? I know a little about it but not a great deal - you may be able to help others that read this post!
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Old 04-03-2007, 04:52 PM
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I'm 23. I don't mind, I had no idea what it was or anything till I became ill and had a load of tests and I went back for the results and he told me, I was like what on earths that. Bit of a shock really, I'll have it now for all my life, it's treatable but not curable. When I was ill I first caught diorreah and sickness off my daughters, only problem mine didn't go. Then I got told I had IBS and given Imodium, THAT WAS THAT, I had terrible stomach cramps and started to bleed. I had tests and found I was aneamic and my liver was functioning abnormally, anyway when they sent me to hospital I was in for over a wk and I lost a stone and half. I then had to have a camera test so they could see and that's when I was diagnosed after a biopsy confirmed it. Anyway the treatment at first is steroids, which make you put a lot of weight on, while you're on them you have to take calcium. And you also take some tablets that sit in your intestines etc and sort of protect them from becoiming inflamed. They can't leave you on steroids for a long time so then you're put on immune suppressants which I'm on now. You've just got to have regular blood tests with them to make sure there not harming you. Sorry for going on but I just want to give as much information as I can, as I knew nothing when I got it. If anyone wants to ask a question feel free, I won't mind.
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Old 04-03-2007, 04:59 PM
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Thanks for that - never know who it may help.
Must have been hard for you to have all that going on with such a young family too! Glad it's under control now.
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Old 04-03-2007, 05:00 PM
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That was the worst part, having to leave my 2 girls while I was in hospital.
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Old 04-03-2007, 05:35 PM
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oh huni sounds like u have been thru it!!!! im so glad they have finally diagnosed u and can now give u the correct treatment to help u!! :smile: thanx for explaining it too coz i'v neva heard of it...
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Old 04-04-2007, 10:33 AM
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sounds like u werent well at all i bet it was hard leaving ur girls, im glad ur ok now though chick xx
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